Talking about this dream with Darchelle, we puzzled over the significance of my not being allowed
into my own garden and the symbolism of the little boy without coming to any clear conclusions.
Later, in writing this up, I noticed how my feeling of frustration sits at the center of the dream,
flanked on one side by my garden and on the other by my journal. That frustration felt familiar in
character but not in its intensity. It is something I experience every day, an unavoidable aspect of
daily life. Instead of activity, I sit, and instead of initiative, I wait, and the bedrock of my
emotional landscape is frustration. The key to coping with it has been to adjust my expectations to
accommodate my disability. By expecting to sit and do nothing, anticipating being unable to do
anything for myself, I temper the frustration that my situation would otherwise engender.
The dream highlights a fundamental similarity between my gardening and my journaling. My garden was
a product of my strength and my creativity, a place of work and pleasure where my physical effort
and skill yielded tangible (and tasty) fruit. In it I was entirely free to work in my own way
without any oversight or assistance from anyone else. If I wanted to plant corn I planted corn. If
I wanted to let the kale go to seed, the kale went to seed, and in the spring I harvested a carpet
of baby kale greens. It may have looked unkempt but in my own eyes it was beautiful. Journaling is
likewise an activity which I do in my own way for my own pleasure. I use obsolete technology to
combine photos and text into something which I enjoy and regard as beautiful. No one else tells me
what to write and no one else can judge the quality of the result. As with gardening, I control
both the process and the product but unlike gardening, journaling is something I can still do.
Being denied access to and control over my garden is an obvious symbol of how ALS limits me from
participating in activities which I have loved. The arrival of the box truck may represent its
onset, while I still lived in Auburn. Has the truck come to give or to take away? Clearly ALS has
taken away much of my life, but on the other hand it has given me much as well. I have been healed
emotionally even as I have been disabled physically. I can do little of what I used to do, and even
that (birding for instance) I cannot do the right way. That may be the significance of the little
boy, who creeps through the fence rather than entering through the gate. He is doing what I would
have done, but not in the way I would have done it. His dark hair may represent Darchelle's role
in my life, enabling me to continue to do some of the things I formerly did, even if we cannot do
them together exactly in the way I would have done them on my own.